A Care Notebook is one tool that can help you organize important information about your child. It can help you:

  • Keep track of medicines, therapy or treatments
  • Organize contact information for health care providers, therapists and community organizations
  • Prepare for appointments
  • File your child’s health history

How do I get started?


  • Gather existing information such as discharge reports, clinic visit summaries, immunization records, school plan, test results and care plans. Read this list of commonly requested documents for ideas on what to keep.
  • Build an notebook using a 3-ring binder, expandable folder, box or other device.
  • Clear page protectors make it easy to remove pages and business cards.
  • Some families have different notebooks for school and health records.

Forms for your care notebook:

Download the entire care notebook (all the files below included)
Download individual care notebook pages:

Contact Information

Tracking Tools



Support Resources




Equipment and Supplies






Document Your Child’s Care Plan

Visit Care Plans for Parents for information on creating a Care Plan. Be sure to include copies in your care notebook.