Care Notebook

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Care Notebook 3-ring binder"I use the Notebook to organize my thoughts and concerns before a doctor's appointment. It gave me confidence and credibility."

The Care Notebook is a tool you can use to organize information about your child’s chronic health condition. It has many pages that can be filled out to be used as a reference about your child’s health and treatments. The notebook can then be taken with you to share with doctors, other health care professionals, or school or child care personnel.

Uses for the Care Notebook include:

  • Tracking changes in your child’s medicines or treatments
  • Listing phone numbers for health care providers and community organizations
  • Prepare for appointments
  • File information about your child’s health history
  • Share new information with your child’s primary doctor, public health or school nurse, daycare staff, and others caring for your child

To set up your Care Notebook:

  • Step 1: Gather your existing information: Gather up any health information you already have about your child. This may include reports from recent doctor’s visits, immunization records, recent summary of a hospital stay, this year’s school plan, test results, or informational pamphlets.
  • Step 2: Review the Care Notebook: Which of these pages may help you keep track of information about your child’s health or care? Choose the pages you like. You can either print copies of any that you think you will use and fill them out by hand, or download a copy and save it to your computer so that you can easily update the pages in the future.
  • Step 3: Choose what to keep in the Care Notebook: Decide what information you look up most often and what information is needed by others caring for your child. Store other information in a file drawer or box where you can find it if needed.
  • Step 4: Assemble your Care Notebook: The key is to make it easy for you to find the information you need, quickly and easily. Some ideas in putting your Care Notebook together include using tabbed dividers to create your own sections, pocket dividers to store reports, and/or plastic pages to store business cards and photographs.

Care Notebook: Download the entire Care Notebook or use the links below to download out a specific page.

Create Care Team/Service Provider Contact Lists
Hospital Information List
Medical/Dental Care Providers List
Public Health Care Providers List
Home Care Providers List
Therapists List
Early Intervention Services List
School List
Child Care Providers List
Respite Care List
Pharmacy List
Special Transportation List
Family Information List
Family Support Resource List
Insurance/Funding Sources List
Create a Summary of Your Child's Abilities and Special Care Needs
Activities of Daily Living
Care Schedule
Your Child - Now and Later
Communication
Coping/Stress Tolerance
Mobility
Nutrition
Respiratory
Rest/Sleep
Social/Play
Transitions (Looking Ahead)
Keep Track of Appointments and Care
Appointment Log
Medical/Surgical Highlights
Lab Work/Tests/Procedures List
Growth Tracking Form 
Equipment and Supplies List
Notes
Medications List
Diet Tracking Form
Hospital Stay Tracking Form
Medical Bill Tracking
Make a Calendar
Document Your Child's Care Plan
Visit Care Plans for Parents for information on creating a Care Plan and be sure to include copies in your Care Notebook.