Diagnosis Information
The diagnoses listed below are chronic conditions in children. The Center does not offer specific diagnosis information, but we would like to help you connect with places to find accurate information.
While the list does not include all childhood chronic diagnoses, it is a starting place to find reliable websites that contain information about the condition, care or safety. If you are a teen, check out our Understand Your Own Health Condition for tips on how to do research online. It may also help you to find out general information on how the body works.
For information about resources for children with special needs and their families, visit Getting Started After a New Diagnosis, and download the Starting Point Guide (Washington State information).
Please choose a letter range from below:
A - B | C - D | E - H | I - L | M - O | P - S | T - Z
Abdominal wall defects
See Gastroschisis
Achondroplasia
See Dwarfism
Adrenal hyperplasia
- General information from National Institute of Child Health and Human Development
- General information from National Organization of Rare Disorders
AIDS (acquired immunodeficiency syndrome)
Anencephaly
- General information from National Institute of Neurological Disorders and Stroke
- General information from the National Library of Medicine
Angelman syndrome
Anorexia nervosa
See Eating disorders
Anxiety
- Definition, Children at Risk, Diagnosis, Treatment, Real Life Stories from the NYU Child Study Center
- General information from Nemoursfor Parents or for Teens
- Choosing a Mental Health Professional for Your Child: Who What When and How from the NYU Child Study Center
Aortic stenosis
- General information from Seattle Children's Heart Center
- General information from the American Heart Association
Apert syndrome
- General information from Seattle Children's Craniofacial Program
- General information from Children's Craniofacial Association
Arrhythmia
- General information from Seattle Children's Heart Center
- General information from the American Heart Association
Arthritis (Juvenile Rheumatoid Arthritis)
- General information from Seattle Children's
- General information from Nemours Foundation for Parents or for Teens
Asperger's syndrome
Asthma
Atrial septal defect
- General information from Seattle Children's Heart Center
- General information from Medline Plus
- General information from Nemours Foundation for Parents or for Teens
Attention deficit hyperactivity disorder (ADHD)
- Children and Adults with Attention Deficity/Hyperactivity Disorder (CHADD)
- General information from Nemours Foundation for Parents or for Teens
Autism and Autism Spectrum disorder
- Seattle Children's Dr. Bryan King’s “A Closer Look at Autism” article
- Autism Guidebook for Washington State
- Information from Autism Speaks
- Information on Autism for Kids
- My Next Steps: A Parent's Guide to Understanding Autism Videos and Information
- Autism resources for Washington State families in English or Spanish
Autoimmune disorders
- General information from Medline Plus
- General immune system information from Nemours for Parents and for Teens
Batten disease
Beckwith-Wiedemann syndrome
Bipolar disorder
Blindness
See Vision loss
Bone cancer
- General information from Seattle Children’s Cancer Program
- Information from National Cancer Institute
Bone dysplasis
See Dwarfism
Brain cancer
- General information from Seattle Children’s Cancer Program
- General information from Seattle Children’s Neurosurgery Program
- General information from Medline Plus
Bronchiectasis
Bronchopulmonary dysplasia
C - D
Cardiomyopathy
- General information from the Seattle Children’s Heart Center
- General information from the American Heart Association
Cerebral palsy
CHARGE syndrome
Chiari malformations
- General information from Seattle Children’s Craniofacial Program
- General information from Nemour Foundation
Child behavior disorder
See Conduct disorder
Chromosomal abnormalities
- General information from the March of Dimes
- General information from Unique Rare Chromosome Syndrome Support
Cleft lip and palate
- General information from Seattle Children’s Craniofacial Program
- General information from Nemour Foundation for Parents or for Teens
- Critical Elements of Care from Seattle Children’s
Conduct disorder
Congenital diaphragmatic hernia
Congestive heart failure
- General information from Seattle Children’s Heart Center
- General information from the American Heart Association
Connective tissue disease
Craniofacial abnormalities
- General information from Seattle Children’s Craniofacial Program
- General information from Children’s Craniofacial Association
Craniosynostosis
- General information from Seattle Children’s Craniofacial Program
- General information from Children’s Craniofacial Association
Crohn’s disease
- General information from Seattle Children’s General Surgery Program
- General information from Crohn's and Colitis Foundation of America
Crouzon syndrome
Cystic fibrosis
- Cystic Fibrosis Parent Handbook from Seattle Children's
- General information from Nemours for Parents or for Teens
Deafness
See hearing loss
Depression
- Depression in Children and Adolescents from the National Institute of Mental Health
- Depression-Causes, Treatments, Diagnosis, Definitions, Real Life Stories from the NYU Child Study Center
- Major Depressive Disorder in Children and Adolescents Screening Checklist from the NYU Child Study Center
- Choosing a Mental Health Professional for Your Child: Who What When and How from the NYU Child Study Center
- Antidepressant Medications for Children and Adolescents from the National Institute of Mental Health
- For Kids: Going to a Psychiatrist, Therapist or Psychologist from Kid's Health
Diabetes
- Seattle Children’s “What is Type 1 Diabetes?” fact sheet in English or Spanish
- Seattle Children’s “What is Low Blood Sugar?” fact sheet in English or Spanish
- Seattle Children’s “What is High Blood Sugar?” fact sheet in English or Spanish
- American Diabetes Association information on Type 1 diabetes or Type 2 diabetes
- Nemours Foundation Diabetes Center information for Parents or for Teens
DiGeorge syndrome
See Velocardiofacial syndrome
Down syndrome
- General information from Medline Plus
- General Information from the Nemours Foundation
- Down syndrome resources for Washington State families in in English or Spanish
Duchenne muscular dystrophy
- General information from Medline Plus
- General information from the Muscular Dystrophy Association
- General information from the Nemours Foundation for Parents or for Teens
Dwarfism
- General information from Seattle Children’s Orthopedic Program
- General information from the Nemours Foundation
E - H
Eating Disorders
- Information from the National Eating Disorders Association
- General information on eating disorders for Parents or for Teens from Nemours Foundation
- General information on binge eating disorders for Parents or for Teens from Nemours Foundation
Ehlers-Danlos syndrome
- General information from Medline Plus
- Also see Connective tissue disease
Epilepsy
- General information from Seattle Children’s
- General information from Medline Plus
- Epilepsy Foundation Northwest
- Washington State Department of Health Epilepsy Page
- Epilepsy resources for Washington State families in English or Spanish
Epispadias
Fetal alcohol spectrum disorder
- General information from Seattle Children’s
- General information from Medline Plus
- General information from the Center for Disease Control and Prevention
Fragile X syndrome
Gastroesophageal Reflux
Gastroschisis
- General information from Seattle Children’s General Surgery Program
- General information from Medline Plus
Glycogen storage disease
Goodpasture syndrome
Hearing loss
- General information from Medline Plus
- Information from Seattle Children's Hospital
- Safety tips fact sheet from Seattle Children’s
Heart murmurs
- General information from Seattle Children’s Heart Center
- General information from the Nemours Foundation
Heart transplant
- General information from Seattle Children’s Transplant Program
- General information from Medline Plus
Hemiplegia
See Paralysis
Hemophilia
Hepatitis
Hirschsprung Disease
HIV (human immunodeficiency virus)
- General information from Pediatric AIDS Foundation
- Parent handouts from Seattle Children’s Virology Clinic
- Guideline of Care for Health Care Professionals
Hodgkin lymphoma
Hydrocephalus
- General information from Seattle Children’s Neurosurgery Program
- General information from Medline Plus
Hypospadias
- Fact Sheet from Seattle Children's
- General information from Medline Plus in English or Spanish
Hypothyroidism (congenital)
I - L
Immune thrombocytopenic purpura
- General information from Seattle Children’s Cancer Program
- General information from National Heart Lung & Blood Institue
Inflammatory Bowel Disease
- General information from Seattle Children’s
- General information at the Nemours Foundation for Parents or for Teens
Intellectual disability
- General information from the Centers for Disease Control and Prevention
- Information from the National Dissemination Center for Children With Disabilities
Intestinal failure
Jeune Syndrome
Kidney failure
- General information from Seattle Children’s Transplant Program
- General information from Medline Plus
Kidney tumors
Leukemia
Liver failure
- General information from Seattle Children’s Transplant Program
- Information from Pediatric Acute Liver Failure Study
Lordosis
Lupus
- General information from Lupus Foundation Of America
- General information from Seattle Children's
- General information from the Nemours Foundation for Parents or for Teens
M - O
Marfan syndrome
- General information from Seattle Children’s Heart Center
- General information from the National Marfan Foundation
- Also see Connective tissue disease
Mitral valve abnormalities
Nephritis
Neuroblastoma
Neurofibromatosis, Type 1
Neurotube defects
Non-Hodgkin lymphoma
- General information from Seattle Children’s Cancer Program
- General information from Medline Plus
- General information from the Nemours Foundation for Parents or for Teens
Obesity
- General information from Medline Plus
- General information from the Nemours Foundation for Parents or for Teens
Opposition defiant disorder
Osteogenesis imperfecta
- General information from Medline Plus
- General information from the Osteogenesis Imperfecta Foundation
P - S
Pancreas transplant
Panic disorder
Paralysis
Patent ductus arteriosus
Pervasive development disorder
Pierre Robin sequence
- General information from Seattle Children’s Craniofacial Program
- General information from Children’s Craniofacial Association
Pituitary dwarfism
Post traumatic stress syndrome
Prader-Willi syndrome
Prematurity
Quadriplegia
See Paralysis
Renal failure
See Kidney failure
Rhett syndrome
- General information from Medline Plus
- Information from the National Institute of Neurological Disorders and Stroke
Rheumatic heart disease
Sarcoma
Schizophrenia
- General information from Medline Plus
- Information from the American Academy of Child and Adolescent Psychiatry
Scoliosis
- General information from Seattle Children’s Orthopedic Program
- General information from Medline Plus
- General information from the Nemours Foundation for Parents or for Teens
Seizures
- General information from Medline Plus
- General information from the Nemours Foundation
- First aid fact sheet from Seattle Children’s
- Water safety fact sheet from Seattle Children’s in English or Spanish
Sickle cell disease
- General information from Seattle Children’s Cancer Program
- General information from Medline Plus
- Critical Elements of Care from Seattle Children’s
- Safety tips fact sheet from Seattle Children’s
Spina bifida
- General information from the Nemours Foundation
- Spina Bifida Association
- General information from the National Library of Medicine
- General information from Medline Plus
Spondylolysis and spondylolisthesis
Stickler syndrome
- General information from Seattle Children’s Craniofacial Program
- General information from the National Library of Medicine
Systemic lupus erythematosis
See Lupus
T - Z
Tetralogy of fallot (congenital heart disease)
- General information from Seattle Children’s Heart Center
- Information from the American Heart Association
Torticollis
- General information from Seattle Children’s Orthopedic Program
- General information from Nemours Foundation
Traumatic brain injury
Treacher Collins Syndrome
Tuberous sclerosis
Ulcerative colitis
Velocardiofacial syndrome (or 22q11.2 Deletion syndrome or DiGeorge syndrome)
- General information on 22q11.2 Deletion Syndrome from Seattle Children’s
- Information from the Velocardiofacial Syndrome Education Foundation
- General information on DiGeorge Syndrome from the American Heart Association
Ventricular septal defect
- General information from Seattle Children’s Heart Center
- General Information From the American Heart Association
- General information from the Nemours Foundation for Parents or for Teens
Vision loss
- General information from Medline Plus
- Safety tips from Seattle Children’s
Von Willebrand disease
Wolff Parkinson White Syndrome