Diagnosis Information
The diagnoses listed below are chronic conditions in children. The Center does not offer specific diagnosis information, but we would like to help you connect with places to find accurate information.
While the list does not include all childhood chronic diagnoses, it is a starting place to find reliable websites that contain information about the condition, care or safety. If you are a teen, check out our Understand Your Own Health Condition for tips on how to do research online. It may also help you to find out general information on how the body works.
For information about resources for children with special needs and their families, visit Getting Started After a New Diagnosis, and download the Starting Point Guide (Washington State information).
Please choose a letter range from below:
A - B | C - D | E - H | I - L | M - O | P - S | T - Z
Abdominal wall defects
See Gastroschisis
Achondroplasia
See Dwarfism
Adrenal hyperplasia
- General information from Medline Plus
- General information from National Organization of Rare Disorders
AIDS (acquired immunodeficiency syndrome)
- General information from Medline Plus
- General information from National Organization of Rare Disorders
Anencephaly
- General information from National Institute of Neurological Disorders and Stroke
- General information from National Organization of Rare Disorders
Angelman syndrome
Anorexia nervosa
See Eating disorders
Anxiety
- Definition, Children at Risk, Diagnosis, Treatment, Real Life Stories from the NYU Child Study Center
- Anxiety Checklist from the NYU Child Study Center
- Types of Anxiety and Symptoms from the American Academy of Child and Adolescent Psychiatry
- Choosing a Mental Health Professional for Your Child: Who What When and How from the NYU Child Study Center
Aortic stenosis
Apert syndrome
- General information from Seattle Children's Craniofacial Program
- General information from Children's Craniofacial Association
- General information from National Organization of Rare Disorders
Arrhythmia
Arthritis
Asperger's syndrome
Asthma
Atrial septal defect
- General information from Seattle Children's Heart Center
- General information from Medline Plus
- General information from Nemours Foundation
Attention deficit hyperactivity disorder (ADHD)
Autism and Autism Spectrum disorder
- Seattle Children's Dr. Bryan King’s “A Closer Look at Autism” article
- Autism Guidebook for Washington State
- General information from Medline Plus
- General information from the Centers for Disease Control and Prevention
- Center for Disease Control and Prevention information designed for kids who have or know someone with autism
- My Next Steps: A Parent's Guide to Understanding Autism Videos and Information
- Autism resources for Washington State families in English or Spanish
Autoimmune disorders
- General information from Medline Plus
- General information from the Nemours Foundation in English or in Spanish
Batten disease
Beckwith-Wiedemann syndrome
Bipolar disorder
Blindness
See Vision loss
Bone cancer
Bone dysplasis
See Dwarfism
Brain cancer
- General information from Seattle Children’s Cancer Program
- General information from Seattle Children’s Neurosurgery Program
- General information from Medline Plus
Bronchiectasis
Bronchopulmonary dysplasia
C - D
Cardiomyopathy
Cerebral palsy
CHARGE syndrome
Chiari malformations
- General information from Seattle Children’s Craniofacial Program
- General information from Medline Plus
Child behavior disorder
See Conduct disorder
Chromosomal abnormalities
- General information from the March of Dimes
- General information from Unique Rare Chromosome Syndrome Support
- General information from Chromosome Disorder Outreach
- General information from Gene Tests
Cleft lip and palate
- General information from Seattle Children’s Craniofacial Program
- General information from Medline Plus
- Critical Elements of Care from Seattle Children’s
Conduct disorder
Congenital diaphragmatic hernia
Congestive heart failure
Connective tissue disease
Craniofacial abnormalities
- General information from Seattle Children’s Craniofacial Program
- General information from Medline Plus
- General information from Children’s Craniofacial Association
Craniosynostosis
- General information from Seattle Children’s Craniofacial Program
- General information from Children’s Craniofacial Association
Crohn’s disease
- General information from Seattle Children’s General Surgery Program
- General information from Medline Plus
Crouzon syndrome
Cystic fibrosis
- Critical Elements of Care from Seattle Children’s
- Respiratory equipment care from Seattle Children’s
- School issue fact sheet for teachers and other school staff from Seattle Children’s
- General information from Medline Plus
Deafness
See hearing loss
Depression
- Depression in Children and Adolescents from the National Institute of Mental Health
- Depression-Causes, Treatments, Diagnosis, Definitions, Real Life Stories from the NYU Child Study Center
- Major Depressive Disorder in Children and Adolescents Screening Checklist from the NYU Child Study Center
- Self Injury in Adolescents from American Academy of Child and Adolescent Psychiatry
- Choosing a Mental Health Professional for Your Child: Who What When and How from the NYU Child Study Center
- Antidepressant Medications for Children and Adolescents from the National Institute of Mental Health
- For Kids: Going to a Psychiatrist, Therapist or Psychologist from Kid's Health
Diabetes
- Seattle Children’s “What is Type 1 Diabetes?” fact sheet in English or Spanish
- Seattle Children’s “What is Low Blood Sugar?” fact sheet in English or Spanish
- Seattle Children’s “What is High Blood Sugar?” fact sheet in English or Spanish
- Safety tips from Seattle Children’s in English or Spanish
- Booklist and resource list from Seattle Children’s
- Medline Plus information on Type 1 diabetes or Type 2 diabetes
- Diabetes Center from the Nemours Foundation
DiGeorge syndrome
Down syndrome
- General information from Medline Plus
- General Information from the Nemours Foundation
- Down syndrome resources for Washington State families in in English or Spanish
Duchenne muscular dystrophy
- General information from Medline Plus
- General information from the Nemours Foundation
- Critical Elements of Care from Seattle Children's
Dwarfism
- General information from Seattle Children’s Orthopedic Program
- General information from the Nemours Foundation
E - H
Eating Disorders
- General information from Medline Plus
- General information on eating disorders or binge eating from Nemours Foundation
Ehlers-Danlos syndrome
- General information from Medline Plus
- Also see Connective tissue disease
Epilepsy
- General information from Seattle Children’s Neurosurgery Program
- General information from Medline Plus
- Epilepsy Foundation Northwest
- Washington State Department of Health Epilepsy Page
- Epilepsy resources for Washington State families in English or Spanish
Epispadias
Fetal alcohol spectrum disorder
- General information from Seattle Children’s
- General information from Medline Plus
- General information from the Center for Disease Control and Prevention
Fragile X syndrome
Gastroesophageal Reflux
Gastroschisis
- General information from Seattle Children’s General Surgery Program
- General information from Medline Plus
Glycogen storage disease
Goodpasture syndrome
Hearing loss
- General information from Medline Plus
- Safety tips fact sheet from Seattle Children’s in English or Spanish
Heart murmurs
- General information from Seattle Children’s Heart Center
- General information from the Nemours Foundation
- General information from Medline Plus
Heart transplant
- General information from Seattle Children’s Transplant Program
- General information from Medline Plus
Hemiplegia
See Paralysis
Hemophilia
- General information from Seattle Children’s Cancer Program
- General information from Medline Plus
- Safety tips fact sheet from Seattle Children’s in English or Spanish
Hepatitis
Hirschsprung Disease
HIV (human immunodeficiency virus)
- General information from Medline Plus
- Parent handouts from Seattle Children’s Virology Clinic
- Guideline of Care for Health Care Professionals
Hodgkin lymphoma
Hydrocephalus
- General information from Seattle Children’s Neurosurgery Program
- General information from Medline Plus
Hypospadias
- Fact Sheet from Seattle Children's
- General information from Medline Plus in English or Spanish
Hypothyroidism (congenital)
I - L
Idiopathic thrombocytopenic purpura
Inflammatory Bowel Disease
Intellectual disability
See Mental retardation
Intestinal failure
Jeune Syndrome
Kidney failure
- General information from Seattle Children’s Transplant Program
- General information from Medline Plus
- General information from the Nemours Foundation
Kidney tumors
- General information from Seattle Children’s Cancer Program
- General information from the American Urological Association
Leukemia
Liver failure
- General information from Seattle Children’s Transplant Program
- General information from Medline Plus
Lordosis
Lupus
- General information from the National Organization for Rare Disorders
- General information from the Nemours Foundation
M - O
Marfan syndrome
- General information from Seattle Children’s Heart Center
- General information from Medline Plus
- Also see Connective tissue disease
Mental retardation
Mitral valve abnormalities
- General information from Seattle Children’s Heart Center
- General information from Medline Plus
- General information from the Nemours Foundation
Nephritis
Neuroblastoma
Neurofibromatosis, Type 1
- General information from Medline Plus
- General information from National Organization for Rare Disorders
Neurotube defects
- General information from Seattle Children’s Neurosurgery Program
- General information from Medline Plus
Non-Hodgkin lymphoma
- General information from Seattle Children’s Cancer Program
- General information from Medline Plus
- General information from the Nemours Foundation
Obesity
Opposition defiant disorder
Osteogenesis imperfecta
- General information from Medline Plus
- General information from the National Organization for Rare Disorders
P - S
Pancreas transplant
Panic disorder
Paralysis
Patent ductus arteriosus
- General information from Seattle Children’s Heart Center
- General information from Medline Plus
- General information from the Nemours Foundation
Pervasive development disorder
Pierre Robin sequence
- General information from Seattle Children’s Craniofacial Program
- General information from Children’s Craniofacial Association
Pituitary dwarfism
Post traumatic stress syndrome
Prader-Willi syndrome
Prematurity
Quadriplegia
See Paralysis
Renal failure
See Kidney failure
Rhett syndrome
Rheumatic heart disease
Sarcoma
Schizophrenia
Scoliosis
- General information from Seattle Children’s Orthopedic Program
- General information from Medline Plus
- General information from the Nemours Foundation
Seizures
- General information from Medline Plus
- General information from the Nemours Foundation
- Safety tips fact sheet from Seattle Children’s in English or Spanish
- First aid fact sheets from Seattle Children’s in English or Spanish
- Water safety fact sheet from Seattle Children’s
Sickle cell disease
- General information from Seattle Children’s Cancer Program
- General information from Medline Plus
- General information from the Nemours Foundation
- Critical Elements of Care from Seattle Children’s
- Safety tips fact sheet from Seattle Children’s
Spina bifida
- General information from Seattle Children’s Neurosurgery Program
- General information from Medline Plus
Spondylolysis and spondylolisthesis
Stickler syndrome
- General information from Seattle Children’s Craniofacial Program
- General information from the National Organization for Rare Disorders
Systemic lupus erythematosis
See Lupus
T - Z
Tetralogy of fallot (congenital heart disease)
- General information from Seattle Children’s Heart Center
- General information from Medline Plus
- General information from the Nemours Foundation
Torticollis
- General information from Seattle Children’s Orthopedic Program
- General information from Medline Plus
Traumatic brain injury
Treacher Collins Syndrome
- General information from Seattle Children’s Craniofacial Program
- General information from Children’s Craniofacial Association
Tuberous sclerosis
- General information from Medline Plus
- General information from the National Organization for Rare Disorders
Ulcerative colitis
Velocardiofacial syndrome
Ventricular septal defect
- General information from Seattle Children’s Heart Center
- General information from Medline Plus
- General information from the Nemours Foundation
Vision loss
- General information from Medline Plus
- Safety tips from Seattle Children’s in English or Spanish
Von Willebrand disease
Wolff Parkinson White Syndrome