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Selected tools and resources for nurses, doctors, childcare providers, therapists and other professionals who support children with special health care needs.

Professionals - Children with Special Needs

Linkages Fall 2016: Transition to Adulthood

Linkages Newsletter

Linkages includes information and resources for children with special health, developmental and mental health concerns. Our winter 2018 issue of Linkages focuses on Sexuality And Puberty Education for Youth with Special Needs.

Care Management Resources

 

Continuing Education for Healthcare Providers

… from Seattle Children’s:

 

Family Advocacy Training

Our training workshops help parents and caregivers of children with special needs become involved as advisors, collaborators and advocates within the systems of care for their children. The workshop guides are for use by individuals who have in-depth experience in group facilitation and working with parents and caregivers of children with special needs.

  1. Becoming a Family Advocate
    • 3-hour training
    • Foundational curriculum for becoming a family advocate (also called family advisor)
    • Covers what it means to be a family advocate; the ways and settings in which one can advocate; and basic skills that assist parents in their effectiveness as a family advocate
  2. Telling Your Story With a Purpose
    • 4-hour session
    • For parents and caregivers who would like to advocate for policy or systems-level change for children.
    • Covers what it means to advocate for change, how to define an issue and how to use personal experiences as examples.
    • Includes developing a 2- to 3-minute presentation that could be delivered to decision-makers, such as legislators, a school board, or a city council.

Link to more info on Family Advocacy Training.

 

Childcare for Childcare Professionals

Focus on a Child-Centered Partnership

Child care providers are a child’s family away from home. Providers might be second only to the family in knowing a child well. Parents and providers together focus their efforts on how best to help children grow and mature into happy, healthy youth and adults. The child is the center of the partnership’s attention. Seeing important adults in their life working in harmony puts children at ease and can enhance a child’s self esteem.

Skills that can help you build the parent-provider partnership include:

Link to additional information on Childcare for Childcare Professionals.

 

Care Planning Tools

 

Diagnosis Specific Resources

 

Planning Ahead for School

Family Engagement Training Materials

Our training workshops help parents and caregivers of children with special needs become involved as advisors, collaborators and advocates within the systems of care for their children. The workshop guides are for use by individuals who have in-depth experience in group facilitation and working with parents and caregivers of children with special needs.

  1. Becoming a Family Advocate
    • 3-hour training
    • Foundational curriculum for becoming a family advocate (also called family advisor)
    • Covers what it means to be a family advocate; the ways and settings in which one can advocate; and basic skills that assist parents in their effectiveness as a family advocate
  2. Telling Your Story With a Purpose
    • 4-hour session
    • For parents and caregivers who would like to advocate for policy or systems-level change for children.
    • Covers what it means to advocate for change, how to define an issue and how to use personal experiences as examples.
    • Includes developing a 2- to 3-minute presentation that could be delivered to decision-makers, such as legislators, a school board, or a city council.

Guidelines for Using Training Materials

  1. We ask that you do not charge people to attend the training (unless to cover expenses).
  2. For each training you give, please email us with the following information :
    • Date of training
    • Number of attendees
    • Copies of evaluations of the training
    • Any suggested modifications to the training

Email: cshcn@seattlechildrens.org or mail to:

Seattle Children’s Center for Children with Special Needs
PO Box 5371, M2-16
Seattle, WA 98105

If you have questions about the training materials, please contact Kim Arthur at kim.arthur@seattlechildrens.org

Children with special needs include “… all children who have, or are at increased risk for, chronic physical, developmental, behavioral, or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.” (Maternal Child Health Bureau)

 

Talking with Parents offers child care and early learning providers tips on communicating with parents who have a child with special needs in child care. We hope these materials will be shared among providers, educators and students to help better serve children with special needs and their parents.

Focus on a Child-Centered Partnership

Child care providers are a child’s family away from home. Providers might be second only to the family in knowing a child well. Parents and providers together focus their efforts on how best to help children grow and mature into happy, healthy youth and adults. The child is the center of the partnership’s attention. Seeing important adults in their life working in harmony puts children at ease and can enhance a child’s self esteem.

Skills that can help you build the parent-provider partnership include:

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