Linkages is a newsletter for professionals who work with children who have ongoing health conditions or disabilities.

Neuromuscular Disease Resources

Neuromuscular Disease Resources

For OT/PT’s, nurses, primary care providers, school nurses, teachers and parents.

Assessing Muscle Weakness

 


 

Spinal Muscular Atrophy (SMA)

  • SMA for professionals
    Concise fact sheet for providers. Includes diagnostic criteria, SMA characteristics, tests and measures, treatment, intervention strategies and resources.

 


 

Duchenne Muscular Dystrophy (DMD)

 


 

School Resources

  • Guides to Education for DMD
    Teachers Guide provides overview of DMD, progression and treatments, 5 things every teacher should know, talking to your class about DMD, grade specific guidelines and specific challenges and ways to help. Parents’ Guide includes talking to teachers and school administrators, tips for day-to-day interactions, the IEP and sample school scenarios and suggested ways to respond.

 


 

BrainPOP’s beloved animated duo, Tim and Moby, present the topic of Duchenne in this short, animated movie.

 


 

Handouts for Families 

 

Save the Date! Duncan Seminar 2018
The 2018 Duncan seminar topic will be “Spina Bifida: Promoting Wellness and Preventing Pitfalls.”  The seminar will take place Friday, April 20, 2018 at Seattle Children’s hospital. Sponsored by Seattle Children’s Outreach Education, the Division of Developmental Medicine and Seattle Children’s Center for Children with Special Needs.

Disclaimer: The inclusion of any resource or website in Linkages does not imply endorsement. Produced by the Center for Children with Special Needs, a program of Seattle Children’s with support from the Washington State Department of Health, Children with Special Health Care Needs Program.

 

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