Resources can be enormously helpful and, yet at times, they can be overwhelming. As a place to begin, here are a few reliable ones you may find useful.
The Transition of Care Video Series shares the unique journeys of two patients – a teen with epilepsy and a young woman with cerebral palsy, epilepsy, and other health conditions—as they approach transitioning from a child neurologist to an adult neurologist.
- Checklist for Transition to Adult Healthcare – Created by parents for families to know what to expect and how to prepare.
- Planning for Transition to Adulthood for Youth with Intellectual and Developmental Disabilities – Guide to resources for families.
- The teen section of this website – Information to build communication and self advocacy skills, tracking of personal medical information, and more.
- University of Washington Transition Care Program – Supports young adult patients with complex medical needs as they transition from child-centered to adult-centered healthcare services. They work in partnership with patients, families and providers to prepare young adult patients for an adult model of care and to make their transition a smooth one. (English / Spanish)
- Quiz for Youth: Are You Ready to Transition to Adult Health Care? – Youth and young adults can take this quiz from Got Transition to find out how ready they are to transition to adult care. Provides tips and resources, including how to add medical information to a smartphone, what legal changes happen at 18 years of age, and how to sign up for health insurance.
- Planning for Healthy Transitions – Includes worksheets, transition timeline, age based tips and self-assessments.