Parent-to-Parent (P2P) – Personal support from another parent, who has a child with a similar needs, can be helpful in coping with challenging experiences and feelings. P2P can connect you with another parent of a child with the same or similar diagnosis (volunteer peer mentors).
National Organization for Rare Disorders (NORD) Database – Search by your child’s diagnosis to find a support group or other source of help.
Open Doors for Multicultural Families – A nonprofit, charitable organization dedicated to ensuring that families who have family members with developmental disabilities and special health care needs have equal access to culturally and linguistically appropriate information, resources and services.
Seattle Children’s Support Groups – Contact your regional hospital or healthcare organizations in your area to learn if they offer support group opportunities.
Washington State Fathers Network – Serves fathers and families of children with special needs in Washington State. Includes resources, support groups, essays from fathers, and newsletters.
Washington PAVE – PAVE is a parent directed organization that works with families, individuals with disabilities, professionals and community members in all walks of life and with all types of disabilities. Since 1979, PAVE has provided information, training and support for over 1,000,000 individuals with disabilities, parents and professionals.
Other support organizations in the western states include:
For Siblings of Children with Special Needs
Listen to these experiences from parents who found support and connection in different ways.
Here are a few essays, book lists, and story collections to get you started:
There may be times when getting support from a professional is what you are seeking. There are a variety of providers to whom you can turn such as therapists, counselors, doctors, social workers, clergy, or spiritual leaders. Friends, family, or health care providers can often be your best resources for recommendations.