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Spina Bifida

Medical Information

Facts About Spina Bifida
http://www.sbaa.org/site/PageServer?pagename=ASB_faq
Spina Bifida Association of America

Spina Bifida
http://www.kidshealth.org/parent/system/ill/spina_bifida.html
KidsHealth, Nemours Foundation

Spina Bifida
http://www.nichcy.org/pubs/factshe/fs12.pdf
National Dissemination Center for Children with Disabilities (NICHCY)
     Spanish - La Espina Bifida
     http://www.nichcy.org/pubs/spanish/fs12sp.pdf

Spina Bifida: General Information
http://www.shrinershq.org/patientedu/spinabifida.html
Houston Shriner's Hospital for Children


Family Support
Living with Spina Bifida: a Glimpse for Prevention Campaign Partners
http://www.cdc.gov/Images_-_Video_and_Audio/Images/Birth_Defects/Folic_Acid/LivingwithSB_Eng.pdf
National Center On Birth Defects and Developmental Disabilities
     Spanish - La Vida con Espina Bífida: Una Guía para los Colaboradores
     en la Campaña de Prevención
     http://www.cdc.gov/images_-_video_and_audio/images/Birth_Defects/Folic_Acid/LivingwithSB_Span.pdf
Note: You may order these materials for free from the National Center On Birth Defects and Developmental Disabilities.

Welcoming Babies with Spina Bifida
http://www.waisman.wisc.edu/~rowley/sb-kids/wbwsb.htmlx
Waisman Center, University of Wisconsin


Pictures

Spina bifida
http://www.nlm.nih.gov/medlineplus/ency/imagepages/19086.htm
MEDLINEplus Medical Encyclopedia; U.S. National Library of Medicine, National Institutes of Health
     panish - Espina bífida
     http://www.nlm.nih.gov/medlineplus/spanish/ency/esp_imagepages/19086.htm

Spina bifida (degrees of severity)
http://www.nlm.nih.gov/medlineplus/ency/imagepages/19087.htm
MEDLINEplus Medical Encyclopedia; U.S. National Library of Medicine, National Institutes of Health
     Spanish - Espina bífida (grados de seridad)
     http://www.nlm.nih.gov/medlineplus/spanish/ency/esp_imagepages/19087.htm


Resources
Evergreen Spina Bifida Association (Serving Washington, Oregon, Montana, Idaho and Alaska)
http://www.evergreenspinabifida.org

Children with Spina Bifida - A Resource Page for Parents
http://www.waisman.wisc.edu/~rowley/sb-kids/index.htmlx
Waisman Center, University of Wisconsin

Spanish - Información de la SBAA en español
http://www.sbaa.org/site/PageServer?pagename=ee_main
Spina Bifida Association of America

Disclaimer: The inclusion of any website link (or resource accessed through a link) does not imply endorsement by Children's Hospital & Regional Medical Center or the Center for Children with Special Needs. Seek the advice of your child's health care provider before you act or rely upon any information from these resources.


Last modified: 1/1/08

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