The following is a list of materials and resources developed or collected by the Center for Children with Special Needs through funded projects.
Alphabetical List of Diagnosis Information
Click on the condition to see what materials we have:
Abdominal wall defects
Anencephaly
Asthma
Birth Defects General
Cardiac conditions
Cerebral palsy
Cleft lip and palate
Cystic Fibrosis
Diabetes
Down syndrome
Depression and anxiety
Duchenne muscular dystrophy
Epispadia / Hypospadias
HIV
Hearing Loss
Hemophilia
Juvenile Idiopathic Arthritis
Limb differences
Seizures
Sickle Cell
Spina bifida
Vision Loss
Other Diagnoses & conditions
Abdominal Wall Defects
Find links to fact sheets and websites in English and Spanish on health care, pictures, social and emotional impact on families and support organizations.
Anencephaly
Find links to fact sheets and websites in English and Spanish on health care, pictures, social and emotional impact on families and support organizations.
Asthma
Asthma Management in Educational Settings (AMES)
The purpose of this publication is to provide guidelines for the care of students who have asthma in school settings. Use of the guidelines will assist in creating a safe environment. Located on the American Lung Association of Washington website.
Asthma Fact Sheets
Easy reading fact sheets for children and families in English, Spanish and Vietnamese.
Birth Defects
Birth Defects
Find links to fact sheets and websites in English and Spanish on health care, pictures, social and emotional impact on families and support organizations.
Cardiac Conditions
Safety Tips for Children with Cardiac Conditions 
Handout with tips to help keep children safe. This handout is one of several
Safety Tips for Children with Special Needs.
Also available in
Spanish.
Cerebral Palsy
Cerebral Palsy Critical Elements of Care
A diagnosis-specific educational tool to be used by health professionals. Also check out other
Critical Elements of Care.
Cleft lip and palate
Cleft Lip and Palate Critical Elements of Care
A diagnosis-specific educational tool to be used by health professionals. Also check out other
Critical Elements of Care.
Cleft lip and palate
Find links to fact sheets and websites in English and Spanish on health care, pictures, social and emotional impact on families and support organizations.
Cystic fibrosis
Cystic Fibrosis Critical Elements of Care
A diagnosis-specific educational tool to be used by health professionals. Also check out other
Critical Elements of Care.
Diabetes
Diabetes Fact Sheets
Easy reading fact sheets for children and families in English and Spanish.
Safety Tips for Children with Diabetes
Handout with tips to help keep children safe. This handout is one of several Safety Tips for Children with Special Needs.
Also available in Spanish.
Down Syndrome
Down Syndrome
Find links to fact sheets and websites in English and Spanish on health care, pictures, social and emotional impact on families and support organizations.
Depression and Anxiety
Childhood and Adolescent Depression and Anxiety Tool Kit
This tool kit has been developed in the form of a web page. The kit includes online health information resources focused on anxiety and depression in children and adolescents.
Duchenne Muscular Dystrophy
Duchenne Muscular Dystrophy Critical Elements of Care
A diagnosis-specific educational tool to be used by health professionals. Also check out other Critical Elements of Care.
Epispadia /Hypospadia
Epispadias / Hypospadias
Find links to fact sheets and websites in English and Spanish on health care, pictures, social and emotional impact on families and support organizations.
Hearing Loss
Safety Tips for Children with Hearing Loss
Handout with tips to help keep children safe. This handout is one of several Safety Tips for Children with Special Needs.
Also available in Spanish.
Hemophilia
Safety Tips for Children with Hemophilia
Handout with tips to help keep children safe. This handout is one of several Safety Tips for Children with Special Needs.
Also available in Spanish.
HIV
HIV Parent Handouts
Find several parent handouts about HIV-related topics including: talking to your child about having HIV, HIV facts, infection control, end of life, and talking about sex and HIV.
A Guideline of Care on Understanding and Talking About HIV
Motivational principles are used as the basis for the clinician’s interactions with teens and parents. The focus is on parent and teen understanding of HIV and issues surrounding disclosure of status. These materials were designed to be used as a clinic-based standard-of-care. Materials include visuals to use with patients. Complete Guideline
Juvenile Idiopathic Arthritis
Juvenile Idiopathic Arthritis Critical Elements of Care
A diagnosis-specific educational tool to be used by health professionals. Also check out other Critical Elements of Care.
Limb Differences
Limb Differences - Limb Reductions
Find links to fact sheets and websites in English and Spanish on health care, pictures, social and emotional impact on families and support organizations.
Seizures
Seizures Fact Sheets
Easy reading fact sheets for children and families in English and Spanish.
Safety Tips for Children with Seizures
Handout with tips to help keep children safe. This handout is one of several
Safety Tips for Children with Special Needs.
Also available in
Spanish.
Sickle Cell
Sickle Cell Critical Elements of Care
A diagnosis-specific educational tool to be used by health professionals. Also check out other
Critical Elements of Care.
Safety Tips for Children with Sickle Cell
Handout with tips to help keep children safe. This handout is one of several
Safety Tips for Children with Special Needs.
Spina bifida
Spina Bifida
Find links to fact sheets and websites in English and Spanish on health care, pictures, social and emotional impact on families and support organizations.
Vision Loss
Safety Tips for Children with Vision Loss
Handout with tips to help keep children safe. This handout is one of several
Safety Tips for Children with Special Needs.
Also available in
Spanish.
Other diagnoses & conditions
For a more comprehensive listing of information by diagnosis, go to:
