Center News Archive

We are starting the new year with the launch of our new Story Network for parents of a child or teen with ongoing health condition or special needs.  We want it to be a place where you can can read stories that are both honest and hopeful, as well as a place to share your story with other parents.

Please check it out and tell us what you think or tell your story.

The Center is looking for teens or young adults between the ages of 14-18 years old living with a chronic condition (that has lasted or is likely to last one year or longer) to participate in a focus group. We are gathering input on how teens use the web and what types of information they would look for in order to redesign and provide new content on the Teens tab of our website.

Focus group will take about 1.5 hours and will be held at Seattle Children’s Sand Point Way location.  It will be during an evening between November 10th-12th. Written parental permission is required for participating teens. A participant incentive of a $25 check will be mailed to each participant following the session.

If you or anyone you know is interested in participating, please email Jean Popalisky.

The Center has been working with parents and professionals to launch a new oral health resource.  Visit the new Dental Care for Children with Special Needs to learn about children with special needs' unique oral health issues, read tips for a healthy mouth, and find and prepare for a dental visit.  Have ideas for other content you would like to see?  Contact us to let us know what type of information you are interested in.