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Center News Archive

Submitted by admin on Sun, 10/26/2008 - 4:55pm
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  • 7/1/10: New Information, New Look for Teens

    Today we launched a redesigned Teens Tab on the site based on feedback from teens. New information has been added to help teens advocate for themselves, look for their first job, take a more active role in managing their health care, and much more. Take a peek and let us know what you think!

  • 5/18/10: We Need Suggestions From Parents

    We are looking to find out what types of information parents might find helpful.  As a parent of a child or teen with an ongoing health condition, is there information that you have looked for and have been unable to find?  What would you be interested in learning more information about?  Please help us better serve your needs by filling out our quick online survey.

  • 5/4/10: 2010 Starting Point Guide Now Available

    The Starting Point Guide has been updated for 2010 and is now available.  You can download the PDF or find it in the "Related Links" section of our Getting Started After a New Diagnosis page.

  • 4/27/10: Are You a Teen or Parent of a Teen Living with a Chronic Health Condition?

    If you live near Seattle, we still have a few spaces left for our Taking Flight: A Journey from Pediatric to Adult Health Care education workshop.  Last year's event was well-received by both teen and parent participants.  This year's event will be held on Thursday, May 6th from 6:30 - 8:30 pm. 

    If you have questions about how to move from pediatric to adult health care, please join us for a free evening about teen health transition.  For more information or to sign up, please see the event flyer.

  • 2/2/10: Plan Ahead for Summer

    Most summer camps fill up fast, so it may help to start looking early for summer camps that fit you and your child's needs. If you live in Washington State and are interested in summer camps and programs for children with special needs, our Summer Camp Directory for 2010 is now available. It lists over 60 camps and programs in Washington State for children with special health care needs or disabilities.

  • 1/4/10: Story Network

    We are starting the new year with the launch of our new Story Network for parents of a child or teen with ongoing health condition or special needs.  We want it to be a place where you can can read stories that are both honest and hopeful, as well as a place to share your story with other parents.

    Please check it out and tell us what you think or tell your story.

  • 11/11/09: Sign Up to Receive Linkages Newsletter Notifications

    We have mailed our last hard copy version of Linkages, the newsletter that provides news and events, grant opportunities, tools and resources, journal articles, and more for Washington State professionals caring for children with special needs.  If you are interested in still receiving Linkages, please take a minute to subscribe online to receive the next Winter 2010 edition in your email inbox.  This edition will be sent in January and will focus on obesity.

  • 10/20/09: In Need of Teens in the Seattle Area

    The Center is looking for teens or young adults between the ages of 14-18 years old living with a chronic condition (that has lasted or is likely to last one year or longer) to participate in a focus group. We are gathering input on how teens use the web and what types of information they would look for in order to redesign and provide new content on the Teens tab of our website.

    Focus group will take about 1.5 hours and will be held at Seattle Children’s Sand Point Way location.  It will be during an evening between November 10th-12th. Written parental permission is required for participating teens. A participant incentive of a $25 check will be mailed to each participant following the session.

    If you or anyone you know is interested in participating, please email Jean Popalisky.

  • 7/21/09: New Site Content

    The Center has recently launched new content for all of our audiences.  Check out the new Planning for Time Away from Home for teens getting ready for events such as sleepovers or summer camp.  Or if you are interested in learning about family advisors, visit Becoming a Family Advisor for parents and caregivers looking for guidance and tips for participation or the Involving Families as Advisors for professionals looking to partner with families in the workplace.

  • 4/23/09: Give Your Child a Healthy Smile

    The Center has been working with parents and professionals to launch a new oral health resource.  Visit the new Dental Care for Children with Special Needs to learn about children with special needs' unique oral health issues, read tips for a healthy mouth, and find and prepare for a dental visit.  Have ideas for other content you would like to see?  Contact us to let us know what type of information you are interested in.