In the beginning, it’s common to experience a range of thoughts and feelings:
We’ve learned the better you know and understand yourself, the better you will be in communicating and partnering with your child’s health care team.
With this new diagnosis, you are entering into a new set of relationships with the healthcare providers who care for your child—the doctors, nurses, therapists and others.
How you approach these relationships makes a difference. They work best when grounded in shared information, mutual respect, and trust.
You make an important difference in your child’s health and well-being.
All along you will be a source of comfort and emotional support for your child—in a way no one else can.
For most parents it is reassuring to learn they will grow more confident and capable over time. With experience, you will learn what works best for you and find ways to make it happen.
Over time you will come to trust you have what it takes to do what you need to do. This is called parental self-efficacy. Research tells us that it is built in four ways: